In Kelly’s Words – I teach now?

 

Last week I spoke to an undergraduate entrepreneurship class in Boston. Not because I have any educational or entrepreneurship skills (well, other than starting a foundation…), but because they’re looking into something that I live everyday.

 

The back-story: my mother-in-law, Mary, is a professor of entrepreneurship at Babson College. She is teaching a semester-long workshop that applies a design thinking approach to a single problem over the course of the semester. She enlisted Zeke and me to help her come up with and frame the “grand challenge”. Our challenge for the class: “How might we better improve outcomes in the first year following a traumatic injury causing permanent physical disability”.

 

After making a video to introduce it the first week of class, last week Zeke and I went down to talk with the students. They pitched us on their rough ideas, asked for our feedback, and we provided resources and topics for research that may be helpful.

 

It was really interesting. It allowed me to see what someone with zero experience with a physical disability (like me when I started college) perceived as the biggest obstacles following a traumatic injury. A few groups focused on accessibility of public transportation. Another group talked about accessibility of college campuses and ways to incentivize campuses to become more inclusive. Higher education is prohibitive for many because of cost, but it shouldn’t be because of accessibility!

 

One group focused on mentorship between previously injured and newly injured individuals. I think facilitating mentorship is ripe for progress. There are a lot of mentorship programs out there, but it is always hard to match people with similar interests and backgrounds. Often the only thing people have in common is the injury! Hearing from someone who is in a similar situation and how they managed everything that you are now facing is huge, but it has to be someone you connect with—and are willing to ask personal questions to.

 

When I first presented the Grand Challenge I assumed they would all focus on employment. We even quoted some pretty startling statistics about disability and employment (the numbers vary, but no study shows more than a 33% employment rate). Surprisingly to me none of the groups focused on or even talked about employment. It’s obviously a big obstacle but an incredibly important step. It’s too easy to get wrapped up in staying home and feeling as though you can’t contribute. Employment can not only provide financial benefits, but it can also show an individual that he/she can still be part of a community, engage in society, and be social.

 

From my perspective, sports and recreation are incredibly important to recovery. I believe that sports and being active allow someone to engage with society and learn they can do everything they did before, just maybe in a slightly different way. That was certainly my experience and what led me and my family to start the Kelly Brush Foundation.

 

The class at Babson has all semester to focus their idea and come up with a plan. I’m excited to follow their progress and see what ideas they come up with! Do you have any ideas? You can email me at [email protected]

 

Dylan Update

We had our first plane ride! We traveled to Colorado for Inspire!Denver (read the recap here) a couple weeks ago and brought Dylan with us. She doesn’t sleep in our arms well (she’s a great sleeper, but she only likes to sleep in her crib) so we were nervous about her naps during our travel days. She only napped for 15 minutes total on the way out, but slept for a couple hours on the way back. On the way home we had flights later in the day so she was tired and slept most of our last flight. Even though she didn’t sleep much on the way out she was generally really happy and didn’t cry much at all. The key to keep her happy was new and novel toys—the airplane cups and our snack wrappers worked great! Traveling for Zeke and I was much less restful and more stressful, but thankfully Dylan made it pretty easy!

In Kelly’s Words – A new sport (for me)!

 

fullsizerender-5I find that I appreciate sports a lot more than I did before my injury. Which is saying a lot because my life before my injury was all sports: an NCAA ski racer; graduate of a ski academy; my mother was an Olympian; my father a former college football player and skier and then coach. As I always tell people when they ask why we started the KBF, I thought after my accident that I would never be an “athlete” again. Then I learned about adaptive sports and what I could still do. Sports are inclusive; I don’t feel different or excluded. This is huge for everyone in the disabled community and one of the missions of the KBF.

 

Well almost 11 years after my injury, I experienced a new one over the holidays: hockey. And being included was incredible!

 

My parents have a pond in their back yard that we used to skate on in the winter as kids. Over the last several years since my sister moved back to Vermont and then we did this past summer, we have started maintaining the ice again. But in the years since my injury, I could never skate. I went on it with my wheelchair a couple times and a few times sat on a sled and my family pulled me around. But I wasn’t skating and often I stayed inside and watched because I was cold just sitting not doing anything active.

 

This winter, though, my parents gifted me a hockey sled for Christmas! I had never tried it and always thought it looked hard! When I got in it for the first time it was simple and amazing! I use two small hockey sticks that have picks on the end to push myself around on the ice. Now I’m out on the pond skating with my family, passing the puck around, and pulling Dylan or my nephews in a sled behind me. It has been a while since I have played a new sport but it felt great to just be out on the ice with everyone again.

 

To be clear, we’re skiers, not hockey players. It must be really funny for good skaters to watch us all out there fumbling around in ski helmets, but that’s what makes it so fun!

 

Now, what do I say to Patrick Standen of Northeast Disabled Athletic Association who’s been recruiting me to get on the ice for the Vermont Sled Cats for years?!?!

 

Dylan Update:

img_7115We have had our first real illness! She has had colds throughout the fall but she usually felt fine, they were just mild coughs and a runny nose. And we even had a little bit of a stomach bug with some vomiting and diarrhea a couple months ago. But last week she had her first high fever (up to 104) and was a really unhappy and miserable looking kid. Being a pediatric nurse practitioner I see sick kids every day and assess what is going on with them and what to worry about. This helped a lot…. Well, kind of…. It’s extremely hard to be objective with my own kid, but the knowledge helps. It has been a long road with fever, coughing, vomiting, an ear infection, and a kid who won’t sleep or eat well, but I think we are on the other side of it now. It’s sad to see Dylan so miserable but she was also very cute and cuddly so that made it just a little bit better. As all experiences with Dylan, I hope this will make me a better and more empathetic nurse practitioner!

In Kelly’s Words – Why the KBF? Why Now?

 

kelly-ride-photoThis time of year we all get asked by a lot of organization to give. We ask too, but it’s not usually me (I leave it to Zeke and our awesome fundraisers)! I’m the “Thank You” person!

This year is different. It has been an INCREDIBLE year for the KBF and I want to take a minute to explain why the Kelly Brush Foundation and why now.

Why the Kelly Brush Foundation?

After my injury all of my closest friends were still ski racing – including my sister and my boyfriend at the time (who is now my husband). While I was still in rehab, my family and I committed ourselves to making sure an injury like mine doesn’t happen to anyone ever again in the sport of alpine ski racing. We wanted safety to no longer be an afterthought. The Kelly Brush Foundation was born.

We advocate ski racing safety at all levels and to every club around the country. A big part of what we preach is proper (and sufficient) use of b-netting. To put our money where our mouth is, we help clubs buy safety equipment when they need it. Now, because of my injury and our work through the KBF, safety is a priority during racing and training across the United States. There is always more to do, but I’m extremely proud of what we have accomplished—and where the sport has come—in the 11 years since my accident.

While our ski racing safety mission focuses on prevention, our adaptive sports mission focuses on empowerment. We empower others with my injury the same way I was empowered by getting back to sports. Before my injury I identified as an athlete. I didn’t truly feel like “myself”—or feel I would ever be myself again—until I got into a handcycle, felt the wind in my hair, and was introduced to the world of “adaptive” sports. We gave this same gift to almost two hundreds people from around the country this year. I can’t stress how important it is. How much do you value your active lifestyle? We add that value to someone’s life when it’s needed most.

Why Now?

For a long time, the Kelly Brush Foundation was just the Kelly Brush Ride. We organized it all summer, paid our bills, counted how much money we had left, and gave it out. Which, don’t get me wrong, was awesome!

That all changed in 2014. New events, new employees, new advocacy. A huge commitment! We’ve doubled in size in the last 2 years. But demand has more than tripled! This is awesome—it means our impact is growing—but it also means we can’t keep up and makes the decisions even harder!

My promise to you: anything you give now will keep a kid safe or empower someone the way sports have empowered me in the coming months! Finding people to help is not the problem. We have more requests each cycle than we can handle! The problem is funding every request that is deserving. If you see the good in our mission, I hope you will find it in your budget to give something (honestly anything!) this year-end.

Donate Now

Dylan Update

For those that are still reading, I know what you’re expecting and I won’t disappoint! She got her first tooth! It’s hard to see so I don’t have a great picture of it but you can definitely feel it! She didn’t seem bothered by it coming in, we never noticed any classic “teething” symptoms. It has been fun giving her solid foods though she isn’t that excited about them all the time. So many people say their kids loved everything and just wanted to eat solids and didn’t want bottles as much. I know some kids take longer to warm up to the idea of solids and I guess Dylan is just one of those. Her recent favorite is carrots and her least favorite seems to be mangos (she makes a really funny face that suggests it is really sour for her).

In Kelly’s Words – How kids react to my wheelchair

IMG_6618One of the things I love about kids is that they are unfiltered. They don’t know about being polite or politically correct or not asking certain questions for one reason or another. And in my job as a Pediatric Nurse Practitioner at Hagan, Rinehart & Connolly Pediatricians in Burlington, VT, I have 1-on-1 interactions with a lot of kids!

I often have kids reacting to me in ways that would, to most adults, seem inappropriate. For example, I walk in the room (I use the verb walk as anyone else would, I see no point to change just because technically I’m rolling and not walking) and before I can even introduce myself the 5-year-old says, “Why are you in that?”. My response is usually the same, “What do you mean? [pause] Oh, my wheelchair?”.

The responses of kids vary greatly based on their age. Young kids, under age 3 probably, often just stare at my chair, too shy to say anything really but clearly fascinated or curious. Older kids, about age 7 or so, stare at my chair but look away when they see that I notice to try to try hide that they were staring but not doing a very good job of it. And the age I love the most for their reaction is the 3 to 7 who have the, “Why do you need that?” reaction.

I much prefer kids—and adults—to ask about my chair than to either stare or just wonder silently and not ask. People are curious because it is something different that they don’t understand. They aren’t trying to be hurtful or inappropriate, they are just trying to learn and understand. I love that! I want to explain!

My answer to my patients varies based on their age usually. It is typically some variation of, “I hurt my back a long time ago so now my legs don’t work well so I use this to get around.” Rather than having them feel sorry for me, I immediately show them something “cool” about my chair like, “It can go really fast,” or “I like it because it’s blue”. Most often parents then chime in and say something like “Yeah isn’t that cool?” If a parent or older kid asks I sometimes elaborate more about how my spinal cord was damaged. Often that’s followed by, “Oh, I’m sorry” or “That’s too bad,” for which I respond, “It’s not bad, I’m still able to do everything I used to do.” Even though I like these conversations I usually don’t try to let them drag on too much and I fairly quickly turn the conversation back to the patient and what they came in for.

What I’m really interested in seeing–and will only play out over time–is the reaction of kids who know me well. I have 3 nephews ranging in age from 2 and a half to 4 months. And, obviously, my 6 month-old daughter Dylan. Dylan will have grown up riding on my lap and having my wheelchair around. She will know no different. Will she someday ask why I use a wheelchair and other people don’t? I wonder when she’ll get there and what will make her think of that. Often time kids will ask if they can ride on my lap or push me around (usually in social settings, this happens less in my office in a professional setting). I wonder if Dylan will want to do these things or if it will kind of be old news to her.

I’m sure one day Dylan will ask about my chair and I bet there will even be a day that she’s embarrassed that I’m in a chair (I mean, I’m her mom, it’ll just be one of many things that will embarrass her…). I also hope there will be a day that she’s proud. But most of all, I hope that when people ask her about why her mom is in a chair she comes up with an answer that she’s comfortable with and explains it simply, just like I have with my patients. I guess that’s on me to guide that conversation as she starts to recognize and contextualize the difference. Just one of the unique parts of my relationship with Dylan!

 

Dylan Update

IMG_6619Just a quick one today. Dylan is a happy kid! It’s funny to hear the “teachers” at daycare remark on how far she’s come in the 2 months she’s been there. She’s gone from being one of the most high maintenance kids in the room to one of the easiest and happiest. We feel the same way at home. She has a jumper that she LOVES. She’s sitting up fairly consistently and making new “human” discoveries every day. We have started giving her solid foods as well which has been a lot of fun. She isn’t the best at eating them but certainly enjoys the process. It’s fun to see what foods she likes and which take a few tries for her to warm up to. We have yet to find anything that she really won’t eat.

[PRESS RELEASE] KBF Announces $275,000 in Awards and Partnerships

 

FOR IMMEDIATE RELEASE

CONTACT: Elizabeth Langfeldt, 802-846-5298 or [email protected]

 

KELLY BRUSH FOUNDATION ANNOUNCES $275K IN AWARDS

FOUNDATION SUPPORTS ADAPTIVE SPORTS, SKI RACING SAFETY AND PARTNERSHIPS

 

Dylan Wells of Axtell, Nebraska, thanks the Kelly Brush Foundation for the Adaptive Sports Equipment Program grant he received that enabled him to purchase a tennis chair in 2016.
Dylan Wells of Axtell, Nebraska, thanks the Kelly Brush Foundation for the Adaptive Sports Equipment Program grant he received that enabled him to purchase a tennis chair in 2016.

SOUTH BURLINGTON, Vt. (October 26, 2016)—The Kelly Brush Foundation awarded $275,000 for adaptive sports gear and ski racing safety equipment grants and strategic partnerships, Executive Director Zeke Davisson announced. This year’s annual grants marked a milestone for the foundation both in the number of awards and the amount awarded.

“We received more applications than ever before from adaptive athletes seeking to improve the quality of their lives and from organizations focused on making ski racing safer,” Davisson said. “As the Kelly Brush Foundation grows we are able to do more, and we are also seeing demand grow. This encourages and motivates us to do even more to meet our mission.”

The foundation awarded 95 Adaptive Sports Equipment Program grants totaling $175,572 for equipment including handcycles for on-road and off-road, sport chairs for basketball, tennis and rugby, and monoskis and race chairs for skiing.

“I can’t put into words how much this is going to help in my path to reigniting my active and competitive lifestyle. I can’t wait to get started,” said Patrick Flautt, of Norcross, Georgia, who received a grant for a handcycle.

A total of 15 ski racing clubs were awarded a total of $54,500 in Ski Racing Safety Grants to purchase safety netting to line training and racing courses. Recipients included the racing program at Mt. Abram in Maine.

“We are grateful to the Kelly Brush Foundation. This grant will help to enable us to net a full trail this winter so we can provide a safe race/training venue,” said Gregg Novick, director, Friends of Mt. Abram.

In addition to the grants for adaptive equipment and ski netting, the foundation allocated $45,000 for Adaptive Sports Partnerships. These funds will support a new initiative called Path 2 Active that creates partnerships with adaptive sports programs and outpatient rehabilitation hospitals to make the path to returning to an active lifestyle as easy and personalized as possible.

The foundation’s fundraising is supported by the foundation’s signature event, the Kelly Brush Ride powered by VBT Bicycling and Walking Vacations. In September the 11th annual ride drew more than 700 cyclists and 30 handcyclists and raised more than $425,000. With the ride as its signature fundraising event, the Kelly Brush Foundation has raised more than $3 million, helped purchase nearly 400 pieces of adaptive sports equipment and helped keep thousands of ski racers safe with hundreds of miles of safety netting, trail widening projects and awareness about ski racing safety.

Next year’s ride is set for September 9, 2017 in Middlebury, Vermont.

 

About the Kelly Brush Foundation: The Kelly Brush Foundation is a 501(c)(3) nonprofit organization dedicated empowering those with paralysis through ownership of adaptive sports equipment and improving safety in the sport of ski racing. The foundation has raised more than $3 million, helping to purchase nearly 400 pieces of adaptive sports equipment and keep thousands of ski racers safe with hundreds of miles of safety netting, trail widening projects and awareness about ski racing safety. Kelly Brush, together with her family, started the foundation in 2006 after she sustained a severe spinal cord injury while racing in NCAA Div. 1 competition as a member of the Middlebury College Ski Team in Vermont. The Kelly Brush Foundation affirms Kelly’s ongoing commitment to live life on her own terms and better the lives of others living with paralysis. www.kellybrushfoundation.org

 

IMAGE CAPTION: Dylan Wells of Axtell, Nebraska, thanks the Kelly Brush Foundation for the Adaptive Sports Equipment Program grant he received that enabled him to purchase a tennis chair in 2016.

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